-
Tweets2K
-
Followers3K
-
Following926
-
Likes4K
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
paper published from the portal. answerals.org #ALSAwarenessMonth #ALSCommunity #ALSResearch #AnswerALS #EndALS #TogetherToAnswerALS
patient-derived iPSC lines at Cedars-Sinai. Genomic, transcriptomic, proteomic, and epigenomic profiles used by researchers at 24 institutions and counting. Nearly 600 active research projects drawing on their samples. Their names are not public. Their contribution is in every
Answer ALS began with 1,100+ participants who contributed blood samples, clinical information, and long-term follow-up data. Many did not live to see what their participation would build. What their contribution built: 250 terabytes of harmonized multi-omics data. Roughly 1,000
companies across four continents. Explore Neuromine: dataportal.answerals.org #ALSAwarenessMonth #ALSResearch #Neuromine #OpenScience #AnswerALS #EndALS #ResearchProgress
learning models for predicting ALSFRS-R decline, investigations of gene-environment interactions, RNA editing analyses, lysosomal dysfunction studies, cuproptosis pathway research, and drug repurposing pipelines. They come from academic labs, biotechs, and pharmaceutical
Nearly 60 new research projects have started on Neuromine since January 2026. At this pace, Answer ALS resources will enable more than twice the research in 2026 as they did in all of 2025. The new projects include: AI-driven identification of ALS molecular subtypes, machine
service members who gave their lives. Learn more about Champion Insights: ChampionInsights.org #MemorialDay #ALSAwarenessMonth #VeteransHealth #ChampionInsights #AnswerALS #EndALS
study, is investigating the genetic and metabolic factors behind this pattern. Matt Bellina, a former Navy Lt. Commander living with ALS, is among the initial cohort alongside Steve Gleason, Kerry Goode, Tim Green, Andrea Lytle Peet, and Eric Stevens. Today we remember the
Today is Memorial Day. Military veterans develop ALS at approximately twice the rate of the general population. A 2017 meta-analysis across nine studies found a 29% increased ALS risk for those who served. The reasons remain unclear. Champion Insights, our remote-participation
decade ago when he announced his retirement as Group President following his ALS diagnosis. Ten years later, Ed still chairs the Advisory Board at Answer ALS, advises Stay Strong Against ALS, and continues working in business and with family. Watch his original 2016 talk here:
Our Advisory Board Chair, Ed Rapp, recently marked 10 years living with ALS. In March, Ed delivered the opening address at the Packard Center's 26th Annual ALS Research Symposium in Baltimore. He spoke about striking a balance, a theme from his final presentation at Caterpillar a
answerals.org/understanding-… so you can recognize them. An hour: explore Neuromine and see which researchers are working on the question closest to your experience. ALS is still here. We’ll be here until it isn’t. answerals.org #ALSAwarenessMonth #DayOfAction #ALSisHere
Today is a Day of Action for the ALS community. One minute: share a post about ALS with your network. Five minutes: call your representative at (202) 224-3121 and ask them to protect ALS research funding. Ten minutes: read about the early signs of ALS at
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
57K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
AZ Latina ☮️🌊�... @aVoice4ALS
4K Followers 5K Following Advocate for people w/ALS & Amyloidosis (that killed Mom). FDA must heed Congressional mandate for regulatory flexibility in all Rare Diseases. #DyingWaiting
Steve Gleason - "Live... @SteveGleason
182K Followers 291 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 918 Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Hande Ozdinler @DrOzdinler
26K Followers 698 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART :
Shah Minokadeh, M.D. @MinoShah
4K Followers 816 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS TX DAD @AlsDads
2K Followers 824 Following
Seth Poling @SethPoling10
4K Followers 371 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 856 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Mandi @RunningMama0522
2K Followers 1K Following
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
BrainStorm @BrainstormCell
5K Followers 763 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Alexa I @ColbyWeight1
12 Followers 422 Following seeking someone to do errands with. that is my love language
Jeroen Pasterkamp @JeroenPasterk
0 Followers 13 Following Neuroscientist, brain circuit development & disease, 🏊♂️, beach https://t.co/R0esHXlnSg
Raymond Williams @wheels2017
119 Followers 1K Following
Joumana Baroody @joumana0125
8 Followers 51 Following
Kaya @kayakayk1
57 Followers 2K Following
Paul Verne @jlately2010
8 Followers 32 Following
✪🇾🇪 @DrGooda14
608 Followers 1K Following Old physician.. Gastroenterology and Hepatology is my profession
Alex Ward MND Angel �... @alexwardfund
530 Followers 886 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Woody @woodybirch
429 Followers 4K Following
Sandra Hildebrandt @SandraH11199833
57 Followers 423 Following
旭阳 周 @EricZhou66688
0 Followers 90 Following
Comic Books for ALS @Comicbooks4als
5 Followers 54 Following Charity organization that accepts comic book donations and provides financial assistance to ALS patients for final expenses.
Redding Cannabis Conn... @CannabisRedding
806 Followers 1K Following Redding Cannabis Connection Blog https://t.co/S1sYg9DN0I Redding Cannabis Facebook Page https://t.co/uLB1lRyjBI We explore Marijuana from Shasta, Humboldt, Chico...
EARL CLARK @EARLCLARK1234
2 Followers 612 Following
Prilenia @PrileniaTx
2K Followers 263 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Neurons Needed @neuronsneeded
10 Followers 56 Following I lost my mom to ALS in October 2025. I write on Medium and create content on YouTube about ALS, practical mental health & life lessons learned.
Ashlee @A_marie_123
46 Followers 409 Following
Max @dema_sal81123
78 Followers 300 Following
Srikanth Dev @asksrikanthdev
22 Followers 170 Following
Scott Reoch @s_reoch
304 Followers 617 Following Turn ons: Legos, hockey, food. Turn offs: microwaved popcorn, nursing home wet t-shirt contests, tasteful lawn ornaments.
lauren ⚡. @Anfisa081245540
147 Followers 2K Following traditional feminine values. faith and family first.
Sarah Whyte, SLP @adultaac
18 Followers 33 Following Sarah Whyte, SLP and ATP, providing Augmentative and Alternative Communication and Assistive Technology services for Adult Neurogenic Populations
kral @Selahat97135392
1 Followers 26 Following
teaMJPx @MiguelP85821568
120 Followers 59 Following Loving life. Enjoying my wife as we fight ALS together. #ALSFighters #DontGiveUp
E T Browning @ETBrowning01
7K Followers 3K Following Retired and enjoying life. Happily married for 49 years. Moderate viewpoint on most issues. Invite honest discussion from differing opinions on issues.
Matt Rocheleau @mrochele
3K Followers 3K Following ALS volunteer advocate | former data & investigations editor at Hearst CT Media & Times Union; Columbia U. adjunct prof; Boston Globe Spotlight reporter
Timothy Williamson @FREDMERC65
3K Followers 4K Following NAVY Brat, MAGA, MAHA, America First, Miss My Kat, DEMS HAVE PROVEN THEMSELVES TO BE SOULLESS✝️🛐🇺🇸🦅🚫DM’s unless I know you or Requested🚫PORN,🚫Crypto!!
Brenda Deslatte @DeslatteBrenda
0 Followers 315 Following
98lang @98lang1998
1 Followers 163 Following
Dianna Militello @militello33
216 Followers 874 Following Just following in faith to get through the day! ✝️🇺🇸
Tsarbaev Boris @BorisTsarbaev
10 Followers 172 Following
Stay in The Light Pod... @CBSSHQintern
106 Followers 6K Following I saw The Light when I wasn’t dying. I disproved Simulation Theory on the Stay in The Light Podcast B-Cuz I wanted to.
Gregg Dalton @gjdalton
63 Followers 1K Following
Sarfraz Ali @sarfraz93132478
11 Followers 597 Following 🧠 Researcher EEG & EMG | 🎙️ Speech Signal Processing | 🧬 Neurodegenerative Diseases | 🤖 Deep Learning & Biomedical Engineering | Bridging neuroscience-- AI
Lim @kalim211
151 Followers 418 Following
Toni Heater @SamuelH69946
74 Followers 503 Following
ScienceMatters @ScienceMat29751
119 Followers 44 Following
Mark @Markt670
1 Followers 27 Following
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
57K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
AZ Latina ☮️🌊�... @aVoice4ALS
4K Followers 5K Following Advocate for people w/ALS & Amyloidosis (that killed Mom). FDA must heed Congressional mandate for regulatory flexibility in all Rare Diseases. #DyingWaiting
Steve Gleason - "Live... @SteveGleason
182K Followers 291 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Sarah Nauser @SarahNauser
14K Followers 559 Following Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
Sandra W. Marlowe @sandrawmarlowe
3K Followers 918 Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Hande Ozdinler @DrOzdinler
26K Followers 698 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART :
Shah Minokadeh, M.D. @MinoShah
4K Followers 816 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS TX DAD @AlsDads
2K Followers 824 Following
Seth Poling @SethPoling10
4K Followers 371 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 856 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Mandi @RunningMama0522
2K Followers 1K Following
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Matthew Herper @matthewherper
111K Followers 3K Following Writing and events at STAT. This is biology's century; Every data point has a face. ‘21 Polk Award. Signal: MattHerper.92
ScienceMatters @ScienceMat29751
119 Followers 44 Following
EndTheLegacy @End_The_Legacy
398 Followers 61 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Bradford G Smith (Bra... @ALScyborg
33K Followers 751 Following I am striving to be a disciple of Jesus Christ. Author: https://t.co/ysjod0rInb @Neuralink P3! Future Link pod https://t.co/jFFuvCpJdF Living with ALS.
Alan Davidson Foundat... @ADFoundationUK
282 Followers 233 Following The Alan Davidson Foundation is a UK registered charity with a strong focus on MND and architecture initiatives.
Amazon Web Services @awscloud
2.2M Followers 434 Following AWS is the world's most comprehensive cloud, enabling organizations to accelerate innovation, reduce costs, and scale more efficiently.
Longitude Prize on AL... @longitude_prize
6K Followers 2K Following Join us in bringing AI to the fight against ALS, the most common form of motor neurone disease. Learn more at our website, and follow us for updates.
Tanabe Pharma America @TanabePharmaUS
2K Followers 100 Following TPA is dedicated to making a real difference in the lives of people living with serious and debilitating diseases. Community guidelines: https://t.co/LVDH9la9BI
Steve Rodriguez @SteveRodz1
311 Followers 764 Following I'm a neuroscientist working to understand the molecular underpinnings of neurodegenerative diseases. Opinions are my own.
CBS Mornings @CBSMornings
524K Followers 2K Following Impactful journalism + exquisite storytelling. Watch @CBSMornings weekdays from 7-9 a.m. with @GayleKing and @NateBurleson on @CBS.
Kristiana Salmon @KristianaSalmon
503 Followers 346 Following ALS/MND researcher, advocate, genetics nerd, 🇨🇦, #womeninstem. Tweets & opinions are my own. she/her
Carol Hamilton @chamtdi
411 Followers 529 Following Fighting ALS while loving the people who live with it. All thoughts and tweets are strictly my own.
Synapticure @synapticure
4K Followers 480 Following Personalized virtual neurology care for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Hugh Jackman @RealHughJackman
13.9M Followers 39 Following
Edward Barbieri @eddiebarb
416 Followers 1K Following
Brian Donnelly 🧬 @DonnellyDNA
846 Followers 39 Following CCO @ Myriad Genetics. Husband, father, animal lover. Fitness, wellness, and longevity enthusiast.
Johnathan CK @JohnathanCK1
241 Followers 58 Following Neurologist and Geneticist at University of Sheffield. Christian, climber, runner and chicken owner.
ALS ONE @alsone_official
1K Followers 601 Following United in ALS Research, Care + Community. #EndALS
Kevin Geraghty @KevinMGeraghty
184 Followers 367 Following Diagnosed with ALS in '22 at age 40. Trying to live each day with strength, courage & love. My words are my own thoughts & are typed with my eyeballs. #fuckALS
King's MND Centre @kingsmnd
2K Followers 318 Following MND Care & Research Centre. Motor Nerve Clinic at Kings College Hospital. Internationally renowned for research & excellence in care. Contact us [email protected]
UmRaf @UmamRafique
43 Followers 173 Following
Suhedri Busli @suhedribusli
169 Followers 910 Following Berkecimpung di dunia maya & belajar berbagai ilmu yang bermanfaat
Ade Minggus Hukom @adehukom
164 Followers 186 Following English Teacher. Currently teaching in a beautiful seashore called Tanjungbumi. A happy Father of D.G Elhasiq Hukom A happy Husband of Santika
metto @MettoBas
20 Followers 250 Following
Facundo Barreto @Facu_burton
167 Followers 149 Following Ing. Electromecánico. Posible Ing. Aeronáutico.
Joao Felippe @felippe_joao
170 Followers 388 Following
Cecilia Vaquerano @Cecilia1992H
183 Followers 1K Following
big papa5446 @bigspebder5134
28 Followers 323 Following
Piranha @BlueFlyProd
153 Followers 97 Following
BioBomb @biobomb777
25 Followers 235 Following
colleen mccullough @Mccullough41082
167 Followers 914 Following #ItWorks #distributor #wrapwithbean #itworksglobal
Woody Brown @_KNOCKonWOOD_
210 Followers 738 Following
BridgetRebecca @BridgetRebecca4
818 Followers 633 Following Momma bear 🐻 fighting for ALS treatments and a cure #Andrewsstrong
Michael Lecker @michaeliamals
387 Followers 139 Following Just some guy working for the ALS community
Sarah Parton (she/her... @sarahkarpar
1K Followers 869 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Joao Pereira @jdpereira
8K Followers 5K Following Neurodegeneration, organoids and iPSCs! Also science careers! Assistant Professor, UAB Neurology, KCNET. Views and opinions expressed are mine alone.
𝐀𝐫𝐩𝐚𝐧 ... @DrArpan100
2K Followers 2K Following Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.
Rothstein Lab @Rothstein_Lab
1K Followers 396 Following Dr. Jeffrey Rothstein is a professor of neurology and neuroscience @HopkinsMedicine and is the founding director of @packardcenter. (trainee run)You might like
